HB 1003 Heads to Senate Committee- DEMAND HEALTH RECORD PRIVACY

Hoosiers – your medical privacy is still at risk.
We’ve been fighting to get real protections added to HB1003—and we’re not giving up.

Now, the Senate Health & Provider Services Committee will be hearing the bill, and we must make our voices heard.

The current version of HB1003 still allows your personal health records to be accessed and shared without your consent—and even worse, it protects the status quo where Hoosiers' medical data is being sold and used without their knowledge.

Despite minor concessions, HB1003 still fails to address the core issue: Hoosiers' personal health records can be accessed and shared without their knowledge or consent.

The bill does nothing to stop the Indiana Health Information Exchange (IHIE) from continuing to operate, allowing the release of sensitive medical records without patient authorization.

The bill still lacks clear opt-in requirements, notification for those already affected, transparency about who has accessed records, and enforceable penalties for violations. Without these critical protections, the privacy of Hoosiers remains vulnerable.

Need background on the issue?
I testified before the House Insurance Committee on 1/28/25.
➡️ Watch testimony: Select the Insurance Committee and date, then skip to 1 hr 12 min

Here is the call to action.

You can also get it sent to your phone by texting 260-286-0988 the word HANDSOFF

HB 1003 must be amended to truly protect Hoosier Medical Records.

The bill will be heard tomorrow at 9:00 AM

📞Call the following today -it should only take 5 minutes to tell them:
“HB1003 still isn’t strong enough to stop the unauthorized release of Hoosier Medical Records to health information exchanges. Hoosiers demand medical privacy!”

Barrett 317-232-9695
Johnson 317-232-9466
Charbonneau 317-232-9494
Busch 317-232-9488
Bohacek 317-232-9533

As always, let us know if they have feedback.

👀Read more about the issue: h4ml.org/handsoff